와상 노인환자 간호제공자의 부담감과 삶의 질과의 관계

김은심,안황란,배행자 노인간호학회 1999 노인간호학회지 Vol.1 No.1

The Burden & Quality of life is an essential component in health of the aged. But even though 'A Correlation Study of Burden and Quality of Life in Family Caregivers of the Aged Bedridden' has been qublished in a western country, few studies in Korea have been conducted related to this concept. This study was conducted to provide a basis for intervention strategies to minimize the caregivers' burden and promote their quality of life through understanding the relationship between the burden and the quality of life of the family caregivers of the aged bedridden. The subjects were 79 family caregivers with the aged bedridden who utilize care in G hospital located within the Chinju city limits. The period of the data collection was from April 10 to November 10, 1998. The caregivers' burden was measured using the Burden Inventory Scale which Montgomery(1985) designed and was modified by Lee, Young Shin (1993). The quality of life was measured using the Ro's Quality of Life Inventory Scale. The collected data were analyzed using the SPSS/pc+ program. The general characteristics were described in teams of statistical numbers and percentages. The degree of burden and the quality of life were measured using the mean score and standard deviation, The correlation between burden and the quality of life was measured using the Pearson Correlation Coefficient. The results of this study are summarized as follows : 1. The burden level of the family caregiver of the aged bedridden patient was 67 at the lowest point and 102 at the highest, with the average of 84.64, which is higher than 77, the median score of the measuring instrument. The mean of objective burdens was 42.53, the mean of subjective burdens was 42.11. 2. The score of quality of life of the family caregiver of the aged bedridden patient was 110 at the lowest point, 182 at the highest and 139.00 in average, which is lower than 141, the median. 3. The burden( total score) of these families and quality of life of their lives were found to be in negatively correlated(r=-.38, p<.01). The objective burden of these families and the quality of life were found to have a negative correlation(r=-.41, p<.01). And, the subjective burden of these families and quality of life were found to be in negatively correlated (r =-.147, p >. 01). In conclusion, when the burden of family caregivers was high, their quality of life was low. Therefore, when planning nursing strategies for caregivers of aged bedridden patients, the burden of family caregiving must be considerd in order to impove the quality of life of the family caregiver who is caring for the aged bedridden person's family. Additionally, it is suggested that supportive care must be provided to reduce the objective burden of the family caregiver.

암환자 가족원의 부담감과 가족기능

박연환,현혜진 성인간호학회 2000 성인간호학회지 Vol.12 No.3

This study examined burdens of primary family caregivers, and family functioning of patients with cancer. In addition, the relationship between two concepts was assessed to develop nursing intervention to reduce the burdens of caregiving, and to improve family functioning. Ninety-two primary family care givers of patients with cancer at a general hospital in Seoul participated in this study. The patients with cancer aged from 19 to 84 yearn with a mean alee of 51 nears, and sixty-one percent were male. About 30 percent of the patients suffered liver and billiard tract cancer. Fifty-six percent of the primary family caregivers were spouses of the patients and 70.7 percent were women. Primary family caregivers' burdens were assessed by the Burden Scale originally developed by Zarit (1980) and Novak & Guest(1989) and modified by Jang (1975) for use in Korea. The instrument consists of six subscales: time-dependent burden, developmental burden. Physical burden, emotional burden, social burden, and financial burden. Family functioning was assessed by the Family APGAR developed by Smilkstein(1978). The results were as follows: 1.The average burden score was 86.1, indicating a moderate level of burden. The time-dependent burden scored highest followed by developmental physical, social, financial, and emotional burdens. The mean score of family APGAR was 9.71; among subjects 82.6% were included in dysfunctional families. 2.Of the characteristics of patients, age, gender, number of admissions, and job were found to be associated with the level of burden. There was no significant difference between patient characteristics and family functioning. Of the characteristics of primary family caregivers, caregiver's perception of patient prognosis was significantly related to the level of burden, and family functioning. Caregiver's sex and age were also related to family functioning. The quality of relationship between a patient and a caregiver was significant situational factors affecting the level of burden, and family functioning. In addition, the income of family. and help from other family members were related to the level of burden. Given the results, it is essential to develop nursing intervention to reduce burden and to improve family functioning, such as support groups.

두부 외상 후 발생한 기질성 정신장애 환자의 가족 부담에 미치는 요인

방영롱(Young-Rong Bang),김철권(Chul-Kwon Kim) 대한사회정신의학회 2013 사회정신의학 Vol.18 No.1

연구목적 : 두부 외상 후 기질성 정신장애를 앓는 환자를 돌보는 주 보호자들을 대상으로 그들이 경험하는 부담을 평가하고, 그 부담에 영향을 미치는 요인이 무엇인지를 규명하기 위함이다. 방 법 : 교통사고나 산업재해에 의한 두부 외상으로 ICD-10 진단기준상 기질성 정신장애로 진단되어, 동아대학교병원 정신건강의학과에서 외래 또는 입원 치료를 받고 있는 환자들의 주 보호자 50명을 대상으로 하였다. 대상 환자와 주 보호자들로부터 면담 혹은 자가 보고 방식으로 사회 인구학적 특성, 가족부담(정신질환자의 가족부담 척도), 우울(Beck 우울척도), 불안(Beck 불안 척도), 사회적지지(다면적 사회지지척도), 환자의 문제행동(BASIS-32) 등을 평가하였다. 자료 분석은 평가한 모든 요인들을 부담에 대한 설명변수로 고려하여 중회귀분석을 실시하였다. 결 과 : 두부 외상 후 기질성 정신장애를 앓고 있는 환자의 주 보호자가 느끼는 부담척도 점수는 평균 58.7점(표준편차 28.2)이었다. 주 보호자의 우울 점수는 평균 26.4점(표준편차 11.8)이었고 불안 점수는 평균 24.7점(표준편차 14.1)이었다. 22점을 절단점으로 하였을 때전체 보호자의 52%와 48%가 각각 우울과 불안을 경험하고 있었다. 가족부담을 설명하는 여러 요인들 중에서 환자 나이, 환자 성별, 흡연 여부, 음주 여부, 보호자가 지각하는 사회적 지지, 환자의 행동증상 등 6개 요인이 전체 가족부담의 80%를 설명하였다. 그 중 환자의 행동증상이 49%로 설명력이 가장 높았다. 행동증상척도(BASIS-32)의 5개 소영역, 즉 대인관계, 우울과 불안, 충동적 또는 중독 행동, 일상생활기능, 정신병적 증상 모두 주 보호자가 경험하는 부담과 유의한 상관을 보였다. 결 론 : 두부 외상 후 기질성 정신장애를 앓고 있는 환자의 주 보호자들은 환자를 돌보는데 있어 상당히 심한 부담과 우울, 그리고 불안을 경험하고 있었다. 이러한 가족부담에 영향을 미치는 요인은 환자의 행동증상, 음주, 흡연, 환자 나이, 보호자가 지각하는 사회적 지지, 환자 성별 등이었다. 이러한 가족부담 요인들 중에서 변화 가능한 요인들을 찾아내어 개선시킨다면, 주 보호자가 느끼는 부담을 효과적으로 줄일 수 있을 것으로 생각된다. Objectives : The purpose of this study is to evaluate the family burden in the primary caregivers of organic mental disorder patients after head trauma, and to investigate the factors influencing family burden. Methods : A total 50 primary caregivers of organic mental disorder patients after head trauma due to traffic or industrial accidents were participated in this study. All patients have attended the psychiatric outpatient clinic or inpatient ward of Dong-A university hospital. We collected data from the caregivers about socio-demographic characteristics, family burden (Family Burden Scale), family depression (BAI) and anxiety (BDI), family perceived social support (MSPSS), patients’ behavior and symptoms (BASIS-32) under several measures. For data analysis, all collected data were considered explanatory variables for burden, then multicollinearity was examined. Results : Total mean score of the family burden in the primary caregivers was 58.7 (SD 28.2). Each score of family depression and anxiety was 26.4 (SD 11.8) and 24.7 (SD 141), and measured up to 52% and 48% of total caregivers. Among several variables influencing the family burden, 6 variables (patients’ age, patients’ sex, patients’ smoking, patients’ alcohol drinking, family perceived social support and patients’ behavior and symptoms) accounted for 80% of the family burden. In particular, patients’ behavior and symptoms turned out to be the highest explanatory ability (49%). When dividing the patients’ behavior and symptoms into five subareas: Personal relationship, Depression and Anxiety, Impulsivity or Addiction behaviors, Daily-life function and Psychotic symptoms, we could see all the subareas were connected with the family burden in a statistically meaningful way. Conclusions : Primary caregivers of organic mental disorder patients after head trauma bore the considerable burden of caring for the patients and felt depressed and anxious. Factors influencing the family burden were patients’ behavior and symptoms, patients’ alcohol drinking, patients’ smoking, patients’ age, family perceived social support and patients’ sex. If we try to figure out the variable factors and improve them, we can decrease family burden effectively.

입원환자 가족원의 부담감에 대한 연구

이영신,서문자 서울대학교 간호대학 간호과학 연구소 1994 간호학 논문집 Vol.8 No.1

The concept of the family burden for helping patients in the hospital as well as in the home setting has been raised as a nursing issue recently. Since the Korean family relationship is very unique and strong in character, the family members usually stay with the patients when they are hospitalized. Due to the heavy duty of the family member to help the patient, they easily faced with the dilemma to handle the burden which perceived. For the total care of the hospitalized patient, the clinical nurse should consider and/or predict the family burden of the patient. Therefore, this study aims to figure out the amount of caregiver's burden and to find out several factors related to the family burden in the context of the holistic care of the hospitalized chronic patients. The specific objectives of this study are: 1) To identify the amount of burden perceived by family caregivers, 2) To identify the relationships between the family caregiver's burden and socioeconomic state, the patient's disease character, and patient's ADL dependency. 3) To identify the relationships between the family caregiver's burden and their caring activities. Data were collected for 3 months from July 6, to September 26, 1992, using 3 instruments at the neurology and the internal medicine nursing units of one university hospital in Seoul. The sample size was 75 caregivers whose family members were admitted due to chronic illness during the study period. The instruments used for this research were caregiver's burden inventory, caring activity checklist of family caregiver, patient's ADL dependency checklist. The collected data analyzed with percentage, oneway ANOVA, Pearson's Correlation, and Cronbach's α. The obtained results were as follows: 1) The average score of the perceived burden of the family caregiver 62.72 which is higher than the mode score of the instrument. The average score of objective burden is higher than the mode score of the instrument and the score of subjective burden is lower than the mode score of the instrument. 2) The degree of family burden was significantly related to the family caregiver and the duration of caregiver's stay in hospital. 3) The characteristics of the patient's illness such as severity of disease and patient's hospitalization day were related to the family caregiver's burden. 4) Patient's ADL dependency was not related to the family caregiver's burden significantly. 5) Total amount of family caregiver's helping activities spent for 3 days was 6 hours and 50 minutes per day and the frequency of their helping activities was about 34 per day. Among their helping activities, nurse-aid activity was negatively correlated with the family burden and the errand or treating the visitors were positively correlated with the family burden. The relationship between the caregiver's activity of the family and the family caregiver burden was not proved significant statistically. In the conclusion, as this study revealed that the burden or the family caregiver was high in degree, the related variables to the family burden such as caregiver's age, duration of caregiver's stay in hospital, disease characteristics, and the length of hospitalization of the patient should be considered by the nurses who are responsible to care of the hospitalized chronic patients on the context of the holistic nursing care.

방문요양서비스의 질과 만족도가 가족부양부담에 미치는 영향 - 가족결속력과 가족적응력의 매개효과 검증 -

조규학 ( Cho Kyu-hak ),김봉화 ( Kim Bong-wha ) 한국자치행정학회 2018 한국자치행정학보 Vol.32 No.3

본 연구는 서울, 경기지역을 중심으로 방문요양서비스를 이용하고 있는 가족부양자를 대상으로 524명을 편의 추출하여 가족결속력과 가족적응력이 방문요양서비스의 질과 만족도가 가족부양부담에 미치는 영향에 대한 매개효과를 분석하였다. 연구결과는 다음과 같다. 방문요양서비스의 질과 만족도는 4.19로 대체적으로 만족하고 있는 것으로 나타났다. 서비스 만족도가 서비스 질보다 높게 나타나며 서비스 만족도 중 신체가사활동지원이 가장 높게 나타나고 정서지원서비스, 개인활동지원서비스 순서로 나타났다. 서비스 질은 신뢰성이 가장 높고 공감성, 대응성, 전문성 순서로 나타났다. 가족의 부양부담은 3.17로 보통 수준보다 약간 높게 나타나 수급자를 부양하는 데 어느 정도 부담스럽게 인식하는 것으로 나타났다. 가족의 부양부담은 신체적 부담이 가장 높게 나타나며 심리·정서적, 경제적, 사회 활동적 부담 순서로 나타났다. 가족결속력과 가족적응력은 3.35로 보통수준을 약간 상회하는 정도에서 긍정적으로 인식하고 있으며 가족결속력은 3.39, 가족적응력은 3.29로 나타났다. 방문요양서비스의 질과 만족도가 가족부양부담에 미치는 영향에 대한 가족결속력과 가족적응력의 매개효과를 구조방정식 모형으로 분석한 결과 가족결속력과 가족적응력 모두 ‘방문요양서비스의 질과 만족도→가족결속력·가족적응력→가족부양부담’ 경로가 유의한 것으로 나타났다. 독립변수인 방문요양서비스의 질과 만족도가 종속변수인 가족부양부담에 미치는 영향에 대한 회귀계수가 유의하지 않았지만 매개변수가 없을 경우 독립변수가 종속변수에 영향을 미치지 못하는 완전매개 효과가 나타났다. 이는 방문요양서비스의 질과 만족도가 가족결속력과 가족적응력에 미치는 영향이 높을수록 부양부담은 상대적으로 감소한다는 것을 의미한다. This study analyzed the mediation effect of which quality and satisfaction of domiciliary visit care services influence family support burdens in terms of family cohesion and family adaptability, by carrying out convenience sampling oriented to 524 family providers depending on domiciliary visit care services in Seoul and Gyeonggi-do. The research results can be summarized as follows The quality and satisfaction of domiciliary visit care services turned out to be satisfactory in general recording 4.19. Service satisfaction was higher than service quality, and support for physical activities and housekeeping tasks in service satisfaction turned out to be the highest, followed by emotional support and support for personal activities. As for service quality, the highest score was with reliability, followed by sympathy, professionalism and responsiveness. Family support burdens recorded 3.17 showing a bit higher than average, and this proves that family providers consider care support partly burden. As for family support burdens, physical support burden is considered the greatest, followed by psychological/emotional support burden, economical support burden and support burden related to social activities. Family cohesion and family adaptability recorded 3.35, which is a bit superior to average, and are considered positive by family providers. Family cohesion was 3.39 while family adaptability was 3.29. According to the results of analysis based on structural equation model regarding the mediation effect of family cohesion and family adaptability in the influence of quality and satisfaction of domiciliary visit care services on family support burdens, both family cohesion and family adaptability turned out to be significant in the pathway of quality and satisfaction of domiciliary visit care services → family cohesion and family adaptability → family support burdens. The results demonstrate that, though quality and satisfaction of services as independent variables do not influence family support burdens, there appeared complete mediation, of which independent variables do not influence dependent variables when there is no mediator variable. This signifies that the stronger the influences of quality and satisfaction of domiciliary visit care services on family cohesion and family adaptability, the weaker the family support burdens. Based on such research results, this study proposed theoretical, practical and political implications.

노인장기요양보험 시설서비스 본인부담금에 대한 가족수발자의 경제적 부담감 영향요인

한은정,이정석,권진희 한국보건행정학회 2012 보건행정학회지 Vol.22 No.3

The purpose of this study is to investigate the factors affecting family caregiver financial burden of out-of pocket expenses for the nursing home service under Long-term Care Insurance System. We conducted a national cross-sectional descriptive survey from July to September 2010 to collect data based on the long-term care benefits cost specification. Total 1,016 family caregivers completed questionnaires. 185 subjects of total were excluded from the data analysis due to being answered by user(18 cases), or caregivers not to pay for services expenditures(122 cases), having a missing data on family caregivers characteristics(45 cases). Finally, 831 subjects were included in the study. The average financial burden was 3.18(±0.71). We divided subjects into two groups by level of burden, high-burden group and low-burden group. In the result of the multiple logistic regression analysis, family caregiver financial burden was significantly higher in family caregivers with ages 40 to 49 compared to less than 40, lower educational level, unsatisfaction for long-term care service, high percentage(more than 50%) of cost-sharing and high total out-of pocket expenses(more than 300,000 won) for long-term care services. Also, Family caregivers who are spouse felt higher financial burden compared to son. This study is meaningful as the first attempt to measure family caregiver financial burden for long-term care service and to identify factors affecting the financial burden. Family caregivers felt financial burden of out-of pocket expenses for the nursing home service. The policy makers, the insurer, and the providers need to pay attention to ease family caregiver financial burden

재가 호스피스환자 가족의 삶의 질과 가족부담과의 관계

이은주,김향동,Lee, Eun-Ju,Kim, Hyang-Dong 한국호스피스협회 2006 호스피스 학술지 Vol.6 No.2

Purpose: This study was conducted to analysis relationship about quality of life and family burden of the home-based hospice patient families. Method: The subjects consisted of 94 families with home-based hospice patient. The ages of the subjects were 17-73 years with hospice patient who receivedhome visiting care and registered at 4 hospitals in Daegu and Kyung-Buk. The data was collected from March to November 2004. The instruments used for the study were Quality of Life Scale (GLS) and Family Burden Questionnaire (FBQ). The analysis was done using frequency, mean, standard deviation, correlation and stepwise multiple regression with SPSS WIN 11.0. Results: The results were as follows: 1. The mean score of family burden was 3.36 ($\pm0.55$). The highest mean score of family burden 6 factors were wellness of future 3.85($\pm1.10$), and the second was economic family burden 3.63($\pm0.97$). 2. The mean score of quality of life was 3.09 ($\pm0.48$). The lowest score of quality of life 6 factors were economic status 2.86($\pm0.54$), and the second was physical state and function 3.01($\pm0.62$). 3. In the home-based hospice patient families, family burden had significant negative correlation with quality of life(r=-0.25, p=0.012). 4. Emotional status accounted for 11% of family burden in the home-based hospice patient families by means of stepwise multiple regression. 5. Economical status accounted for 18 and age accounted for an additional 11% of quality of life in the home-based hospice patient families by means of stepwise multiple regression. Conclusion: The finding showed that family burden and quality of life of home-based hospice patient families were significantly negative correlation and the highest factor of family burden was wellness of future and the most important factor of quality of life was economic status.

노인층과 청ㆍ장년층 뇌졸중 환자가족의 건강상태ㆍ부담감 및 삶의 질과의 관계

김귀분,이경호 성인간호학회 2001 성인간호학회지 Vol.13 No.2

The purpose of this study is to investigate the correlation among the stroke patient family's upon the oomparative appreciation of the adult stroke patient's family and elderly stroke patient's family For this purpose, data were collected from the family care-givers for two groups of stroke Patients under sixty years old and over sixty years of age, admitted at K Hospital and H Hospital in Seoul. The instruments for this research are based on the tool for measuring physital health and Young-hee(1992), the tool fort measuring the sense of burden by S대, Mee-hae and Oh, Ga-sil(1993), and the tool for the quality of life by Noh, Yoo-ja(1988). The sampling for this study was done from December, 2000 until February, 2001. Questionnaire data were drawn up by personal interviews added by the staff nurses. The analysis of collected data are based on general characteristics calculated at the rate of 100 percent of the average, t-test, ANOVA(some difference on a level with p<.05 being subsquently confirmed by DMR) for Health Status, Burden, Quality of Life and Pearson Corretation to verify the hypothetical correlation among the subjects. The results of this study are as follows: 1. In the adult stroke patient family, the factors influencing the physical health proved to be age, present occupation and family-formation. Here, the factors influencing psychological health turned out to be age, matrimonial status, present occupation and family-formation. In the elderly stroke patient family, the factors influencing physical health proved to be age, gender, final academic status, matrimonial status, present occupation, and relation with the patient. Here, the factors influencing the psychological health were age, final academic status, matrimonial status, present occupation, relation with the patient and family-formation. In the former case, the influencing factors upon the burden were matrimonial status, relation with the patient and family-formation. In the latter case, the influences upon the burden were age, gender, final academic status, matrimonial status, present occupation and relation with the patient. In the former case, the influences on the quality of life were gender, and economic situation. In the later case, the influencing factors on the quality of life were age, final academic status, matrimonial status, present occupation, and relation with the patient. 2. The rate of the physical condition in the former case turned out to be 2.83, and the psychological condition 2.37. The physical condition of the latter case was 2.76, and the psychological condition 2.46. The rate of the burden in the former case was 3.14, and that of the latter case was 3.04. The rate of quality of life in the former case proved to be 2.46, and that of the latter case 2.55. 4. The rate of correlation between the burden and the Quality of life appealed to be the of correlation between the psychological health and the burden of a similar (r= -.565). The rate of correlation between the physical health and the psychological health proved to be a moderate correlation (r= .372). The rate of correlation between physical health and the burden turned out to be a low counter-correlation (r= -.276). According to this study, there proved to be a very close correlation the stroke Patient family's health, the burden and quality of life. Thus, it would be necessary to find out various nursing interventions in order to mitigate the stroke patient family's burden in the process of caring for the patients.

재가 장기요양 노인 가족부양자의 부양부담 영향요인

한은정(Han, EunJeong),나영균(Na, YoungKyoon),이정석(Lee, JungSuk),권진희(Kwon, Jinhee) 한국사회정책학회 2015 한국사회정책 Vol.22 No.2

가족부양자의 부양부담이 사회적 이슈로 떠오르면서 노인장기요양보험에서도 장기요양 노인을 가정에서 돌보는 가족부양자를 위한 부양부담 완화 정책에 대한 필요성이 높아지고 있다. 본 연구는 노인장기요양보험 도입 이후 가정에서 재가 장기요양서비스를 이용하며 수급자를 돌보는 가족부양자의 부양부담에 초점을 두고 부양부담의 영향요인을 규명하여 부양 부담 완화정책을 마련하는 데에 기초자료를 제공하고자 시도되었다. 특히, 본 연구에서는 권중돈(1994)의 부양부담 측정도구를 활용하여 노인과 주부양자 관계의 부정적 변화, 사회적 활동제한, 가족관계의 부정적 변화, 심리적 부담, 재정 및 경제활동상의 부담, 건강상의 부담 등 여섯 가지 하위차원별로 부양부담 영향요인을 규명하였다. 이를 위해 2013년 3월 기준으로 전국의 재가급여 이용자의 가족부양자 1,827명을 대상으로 방문면접 설문조사를 실시하였다. 설문조사자료를 바탕으로 28개 항목 점수의 합을 전체 부양부담으로 정의하고, 전체 부양부담과 하위차원별 부양부담에 영향을 미치는 요인을 규명하고자 회귀분석을 실시하였다. 연구결과 전체 부양부담 점수는 140.0점 만점에 평균 90.5점으로 보통 이상으로 나타났고, 전체 부양부담의 영향요인과 6개 하위차원별로 각각의 영향요인에 서로 차이가 있음을 확인하였다. 대표적인 예로, ‘수급자와의 관계’라는 요인은 전체 부양부담에는 영향을 미치지 않지만 ‘노인과 주부양자 관계의 부정적 변화’ 와 ‘재정 및 경제활동상의 부담’ 에는 유의한 영향을 미치는 것으로 나타났다. 본 연구의 결과는 가족부양자의 부양부담 완화정책을 추진하는데 있어 부양부담의 하위차원별로 각기 다른 전략적 접근이 필요함을 나타낸다. 본 연구의 결론 부분에, 이상의 연구결과를 바탕으로 몇 가지 부양부담 완화정책을 제안하였다. 본 연구가 정책 입안자, 보험자, 재가 장기요양서비스 공급자 및 가족부양자들이 재가 장기요양 노인을 가정에서 돌보는 가족부양자의 부양부담과 영향요인을 이해하고 제도를 개선해 나가는 데에 활용되기를 기대한다. As the burden of family caregivers has been rising as a social issue, it needs to develop the policies to alleviate the burden of family caregivers. The purpose of this study is to investigate factors related to family caregivers’ burden with the community-dwelling elderly under the long-term care insurance system, using the Stress Process Model developed by Pearlin(1990). Total 1,827 family caregivers with beneficiaries, who used the long-term care services in their home and community in March 2013, completed questionnaires. Family caregivers’ burden was measured by caregiver burden scale, developed by Kwon(1994). That is helpful in understanding families’ caregiving burden multi-dimensionally. To investigate factors related to family caregivers’ burden, multiple regression analysis was conducted. As a result, family caregivers got the average score 90.5 out of 140 on the total caregiving burden, which indicated a considerable burden. The influencing factors varied among the total and six dimensional burdens. The results of this study showed that a multi-dimensional approach is needed to relieve the family caregivers’ burden. In conclusion, we suggest some strategies to relieve the caregiving burden for family members. It is expected that this study would be helpful to policy-makers, the insurer, the long-term care providers and family caregivers in understanding the caregiving burden and influencing factors.

가족중심실천이 장애아 가족의 양육부담에 미치는 영향

유영준,백은령 한국장애인복지학회 2013 한국장애인복지학 Vol.- No.22

This study was done to find out the effects of the Family-Centered Practice on the family burden of the family with disabled children. We used the survey of the family that had both disabled and non-disabled children aged from 8 to 18. We found out that the family income, disabled types, ADL, care work hours, influenced family burden and family-centered practice totally influenced family burden. The multi-regression showed that in the low level disabled types affected differently between the emotional burden and social burden. Also the results showed that family-centered practice influenced differently on the family burden in the low level. And we found out that partnership had effects on the physical burden and economic burden. Finally we recommended the family-centered practice in order to lighten the family burden. 본 연구는 장애아가족이 경험한 가족중심실천이 양육부담에 미치는 영향을 규명하는데 목적이 있다. 만 8세 이상 18세 이하의 장애아동 및 청소년을 양육하고 있는 가족을 대상으로 한 조사 자료를 분석한 결과, 전체 양육부담의 영향요인에서 장애인가족의 특성 중에서는 수입이, 장애특성 중에서는 장애유형, 일상생활정도, 돌봄 시간이 영향을 미치는 것으로 나타났다. 가족중심실천은 전체 양육부담뿐만 아니라 모든 하위영역에서도 양육부담을 감소시키는 영향력을 발휘하고 있었다. 양육부담의 하위영역에 따른 다중회귀분석 결과에서는 장애유형에 따라 정서적 부담과 사회적 부담에 미치는 영향력이 차이를 보였다. 이와 함께 가족중심실천이 장애인가족의 양육부담에 미치는 영향력은 하위영역에 따라 다소 차이를 보였는 데 신체적 부담과 경제적 부담에서는 파트너십이 유의미한 영향력을 발휘하고 있음을 알 수 있었다. 이를 토대로 장애아가족의 양육부담을 경감시키기 위한 가족중심실천방안을 제시하였다.