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      저자 : Mitsuyo Inoue (검색결과 1 건)
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      • SLE Patients’ Experiences with Daily Life Support from Their Partners: A Qualitative Study

        Mitsuyo Inoue,Hatsumi Kanzaki 한국간호과학회 2021 한국간호과학회 학술대회 Vol.2021 No.10

        Background/Purpose: Systematic lupus erythematosus (SLE) patients need daily life support from their partners. However, the kind of support they need and how they want to be supported has yet to be clarified. This study explores SLE patients’ real-life experiences with daily-life support from their partners. Methods: We recruited outpatients at a rheumatology center. The participants were patients with SLE, who lived with their partners.We conducted aqualitative descriptive research using semi-structured individual interviews with seven participants with SLE. Thedata were qualitatively and recursively analyzed, and findings were synthesized using a thematic approach. Results: Participants were women, mean age was43.1±7.9 years, and SLE duration was 14.4±6.1 years. Seventy-one percent of participants had 2 or 3 children, and 68% had a job. Thematic analysis identified the following six support categories: partner 1) helps with housework afterflare-ups of SLE; 2) converses in a manner that gives assurance and comfort to the patient; 3) gains and deepens understanding about SLE from others’ interactions with the patient; 4) improves understanding about SLE through the patient’s intentional daily disclosures; 5) supports insufficiently because of a lack of understanding of SLE; and 6) provides a sense of security that the partner will provide support whenever it is necessary. Conclusion: The daily-life support the SLE patients need from their partners can be summarized by the following two categories: 1) “help with housework after flare-ups of SLE” and 2) “gain and deepen understanding of SLE through others’ interactions with the SLE patients”. These findings indicate that, in order to reduce SLE patients’ burdens, further research is necessary on interventions focused on partners’ education.

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