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Williams' syndrome을 동반한 선천성 대동맥 판상협착 -치험 1례-
박진석 대한흉부심장혈관외과학회 1995 Journal of Chest Surgery (J Chest Surg) Vol.28 No.4
We expericenced one case of surgical treatment of congenital supravalvular aortic stenosis associated with Willjams` syndrome using Dory procedure. A 22 years-old male patient was admitted to the cardiology department due to dyspnea,easy fatigue,dizziness. On physical examination,systolic murmur was audibled at fight second parasternal intercostal space and his general appearance was elfin face and mental retardation was noted. Cardiac catheterization was revealed as a supravalvular aortic stenosis and pressure gradient was 45mmHg between the left ventricle and the aorta. Successful surgical treatment was accomplished with Inverted Y procedu~:e using Dacron patch[Doty procedure . Postoperative course was uneventful and he was discharged in good condition.
뇌성/피질시각장애를 지닌 중도중복장애아동 부모의 양육경험과 특수교육 지원요구 탐색
박진석,박은혜,이영선 한국지체·중복·건강장애교육학회 2024 지체.중복.건강장애연구 Vol.67 No.2
Purpose: Children with Cerebral/Cortical Visual Impairments (CVI) are underrepresented in Korea’s special education field. This study explored the experiences and support needs of the six parents of children with severe and multiple disabilities including CVI. Method: The researchers collected writings that six parents shared monthly in an online self-help group. Thirty posts were analyzed using the constant comparison method based on grounded theory. Findings The participants shared challenges in receiving medical diagnosis, and assessment, which led to difficulties in early intervention and finding professional special education resources. They relied on individual-based efforts both at home and in school settings to address children's visual needs. Successes and challenges in parenting were noted depending on identifying their child’s accomplishments. Discussion & Suggestion: The researchers discussed the importance of identification and assessment of children with CVI considering their unique visual characteristics. It is recommended that professional experts and adapted learning materials specialized in CVI are needed to provide appropriate special education practices. Additional research using various qualitative methods is needed to further explore the experiences and support needs of parents and professionals supporting children with CVI.