한센병 환자로 살아가기 = (The) lived experience of Leprosy patient

다국어 초록 (Multilingual Abstract)

The aim of this research is to understand the essence of the leprosy patient's life and to supply the fundamental of mediatorial nursing science for the shake of holistic nursing endeavors. This research is based on van Manen's phenomenological hermeneutic approach, one of the qualitative research methods, with a view to grasp the experiences of the Leprosy patients.
Six Leprosy patients in a hospital on the S Island participated in this research. The main material consists of the individual and in-depth interviews with the patients, three non-instructive and non-structural sessions from 28. June, 2003 till 5. September, 2003. This research results in the following 11 themes.
Attacking and prevailing of the evil disease by degrees.
Resentment towards the root cause of the incurable disease.
Deepening despair day by day.
Giving up aims of life.
Shunning of the neighbors and the following traumata.
Homeless wandering.
Earnest hope for healing.
Other torments - deeping heartache in the sake of separation and loneliness.
Misery and hardships due to the hunger and physical strain.
Handicapped because of the after-effect.
Spiritual comfort and reconciliation with oneself and the world.
This research shows that Leprosy is an ailment which shatters throughly the life of the patients, and that to them there remain the after-effect and mental pain even after the healing. Therefore, we need a holistic nursing system, containing the psychological, the mental and the spiritual approach, to understand and comfort Leprosy patients, helping them to live stably and harmoniously.
This implies the expectation for the nursing crew who, hopingly, are so drilled as to command the professional attitude, knowledge and technique, and at the same time to play the role of efficient counsellors, by means of deep understanding of the Leprosy patients in the task of nursing them.

목차 (Table of Contents)

• 목차 = ⅰ
• ABSTRACT = ⅲ
• Ⅰ. 서론 = 1
• 1. 연구의 필요성 = 1
• 2. 연구목적 = 4
• Ⅱ. 문헌고찰 = 5
• 1. 현상학적 문헌고찰 = 5
• 2. 일반적인 문헌고찰 = 6
• Ⅲ. 방법론적 배경. = 10
• 1. 현상학적 연구 방법 = 10
• 2. 밴 매년(van Mannen)의 해석학적 현상학적 연구 = 12
• Ⅳ. van Manen의 해석학적 현상학 방법론 사용 = 15
• 1. 체험의 본질에 집중 = 15
• 1) 현상에 대한 지향 = 15
• 2) 현상학적 질문 형성 = 16
• 3) 가정과 선 이해 = 16
• 2. 실존적 조사 = 17
• 1) 어원 추적 = 17
• 2) 연구자 자신의 경험기술 = 20
• 3) 연구 참여자의 개별체험기술 = 22
• (1) 연구 참여자의 선정 = 22
• (2) 자료수집 방법 = 23
• (3) 연구참여자에 대한 윤리적 고려 = 25
• 4) 질적 연구의 평가 과정 = 25
• 3. 해석학적 현상학적 반성 = 26
• 1) 주제분석 = 27
• 2) 본질적인 주제 결정 = 28
• 4. 해석학적 현상학적 글쓰기 = 72
• Ⅴ. 결론 및 제언 = 76
• 1. 결론 = 76
• 2. 제언 = 78
• 참고문헌 = 79