장애아동 가족이 인지한 사회적 지지가 부모의 양육부담 및 대처행동에 미치는 영향 = (The)effect of social support on parental stress of rearing children with developmental disabilities and family coping behavior

다국어 초록 (Multilingual Abstract)

The purpose of the study is four-fold. First, this study tries to find the effect of socio-demographic factors on the parental stress of rearing children with developmental disabilities, family coping behavior, and the perceived social support which help to clarify the differences among groups of families with developmental disability children. This purpose is important because it answers the empirical question of whether or not parents as well as families with developmental disability children are homogeneous groups. Second purpose is to identify the relationship between parental stress and the perceived social support of the families with developmental disability children. Third purpose is to find the relationship between family coping behavior in rearing children with developmental disabilities and the perceived social support. The fourth purpose is to find factors that influence the quality of life of the families with developmental disability children, taking parental stress and burden, family coping behavior, and the perceived social support into account. The findings of this study provide useful information on the social support to the families of the children with developmental disabilities and the determinants of quality of life of the family.
This study uses the term developmental disabilities based on the diagnostic criteria that define developmental disabilities as presented in the Buck's Behavior Rating Scale, taking Pervasive Developmental Disorders of Early Intervention Program, and American Psychiatric Association's Diagnostic and Statistical Manual of Mental Disorders into account. These diagnostic criteria are generally thought to be the widely accepted criteria used, and operational definition of developmental disabilities can be defined to include the entire range of pervasive developmental disorders that are seen in young children.
In this study, the target population group selected according to specific characteristics is that of families with children of developmental disabilities from age three to seven years old. Data were collected from 221 families of children with developmental disabilities. In order to check the accuracy of the data, the instrument was processed by professionals who had previous knowledge and experience. Missing sections of items, cases of extreme values, inconsistencies, and errors were investigated. Errors discerned through this procedure and all data changes and imputations were identified. After all adjustments were made, this study graphed a profile sheet for each child and family.
Applying analysis of variance and t-test, this study found that the parental stress or burden level, family coping behavior, and perceive social support of the families with developmental disability children were different depending on the socio-economic factors such as family income, parent's age and educational level, economic security, and family structure.
Estimated OLS regression was employed to examine whether or not parental stress or burden and family coping behavior were associated with the perceived social support of the families with developmental disability children when holding other factors constant. The findings showed that the perceived social support has large and statistically highly significant effects on the parental stress and family coping behavior. Also, the function of quality of life of the family were regressed and found that the perceived social support were the most important factor. It indicates that the quality of life of the families varies, depending on the social support to them.
Noting that the perceived social support of the families is likely to affect positively on the quality of life of the families, the policy formulations should pay special attention to the families with disabled children. Since the families of disabled children are particularly at risk, public policy makers should be aware of planning for the needs of the family who appear to be problem group and who need to be considered in determining programs and priorities.
In addition, programs that can provide social support and assist the families to cope with their adverse life conditions and psychological stress should be developed. These intangible supports will provide important psychological benefits to families to educate the disabled children in reaching their fullest potential. It also provides the belief that they are not isolated from social groups and the society has moral and ethical responsibility and commitment.

목차 (Table of Contents)

• Ⅰ. 서론 = 1
• 1. 연구의 필요성 = 1
• 2. 연구문제 = 6
• 3. 용어의 정의 = 7
• Ⅱ. 이론적 배경 = 9
• 1. 사회적 지지 = 9
• 2. 양육부담 = 19
• 3. 대처행동 = 33
• 4. 삶의 질 = 39
• Ⅲ. 연구 방법 = 44
• 1. 연구대상 = 44
• 2. 자료수집 방법 = 44
• 3. 자료분석 방법 = 44
• 4. 연구모형 = 45
• 5. 측정도구 = 46
• 1) 사회·인구학적 요인 = 46
• 2) 장애아동가족이 인지한 사회적 지지 척도 = 46
• 3) 부모의 양육부담 척도 = 48
• 4) 부모의 대처행동 척도 = 49
• 5) 부모의 삶의 질 척도 = 50
• Ⅳ. 연구결과 및 해석 = 51
• 1. 조사 대상자의 사회·인구학적 특성 = 51
• 2. 사회.인구학적 특성에 따른 척도별 차이 = 53
• 1) 사회적 지지와 사회·인구학적 특성 = 53
• 2) 양육부담과 사회·인구학적 특성 = 55
• 3) 대처행동과 사회 인구학적 특성 = 57
• 4) 삶의 질과 사회 인구학적 특성 = 59
• 3. 변인 간의 상관관계 = 61
• 1) 부모의 양육부담 관련 변인간의 상관관계 = 61
• 2) 대처행동 관련 변인과의 상관관계 = 62
• 3) 삶의 질 관련 변인와의 상관관계 = 64
• 4. 양육부담, 대처행동, 삶의 질의 결정요인 = 65
• 1) 사회적 지지와 양육부담과의 관계 = 66
• 2) 사회적 지지가 대처행동에 미치는 영향 = 67
• 3) 사회적 지지와 삶의 질과의 관계 = 69
• Ⅴ. 결론 및 제언 = 72
• 1. 결론 = 72
• 2. 제언 = 76
• 참고문헌 = 78
• Abstract = 89
• 부록 = 92
• 설문지 = 92