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1 Lamb C, "Understanding the experience of living with spinal muscular atrophy : a qualitative description" 40 (40): 250-256, 2008
2 Giorgi A, "The phenomenological movement and research in the human sciences" 18 (18): 75-82, 2005
3 Yang BH, "The experiences of families living with the anticipatory loss of a school-age child with spinal muscular atrophy-the parents'perspectives" 25 (25): 2648-2657, 2016
4 Guba EG, "The Sage handbook of qualitative research" Sage Publications Ltd 191-215, 2005
5 Hui-Chuan Yang, "Teenagers who coexist with cancer:chemotherapy body and self-integration" Ovid Technologies (Wolters Kluwer Health) 44 (44): E1-E12, 2021
6 Gu SH, "Spinal muscular atrophy" TW Health Promotion Administration
7 Brian H.Y. Chung, "Spinal Muscular Atrophy: Survival Pattern and Functional Status" American Academy of Pediatrics (AAP) 114 (114): e548-e553, 2004
8 Lin PJ, "Small fish can also drive the submarine : action research for powered wheelchair intervention for a student with profound and multiple disabilities" 38 (38): 99-125, 2013
9 Missel M, "Regaining familiarity with own body after treatment for operable lung cancer-a qualitative longitudinal exploration" 25 (25): 1076-1090, 2016
10 Graham N, "Play experiences of children with a high level of physical disability" 73 (73): 2019
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25 Kao WT, "Emergency room visits and admission rates of children with neuromuscular disorders : a 10-year experience in a medical center in Taiwan" 60 (60): 405-410, 2019
26 Mercuri E, "Diagnosis and management of spinal muscular atrophy : part 1 : recommendations for diagnosis, rehabilitation, orthopedic and nutritional care" 28 (28): 103-115, 2018
27 Wiemann CM, "Development of a group-based, peer-mentor intervention to promote disease self-management skills among youth with chronic medical conditions" 48 : 1-9, 2019
28 Lee MY, "Body image of children and adolescents with cancer : a metasynthesis on qualitative research findings" 14 (14): 381-390, 2012
29 Bassola B, "Being yourself and thinking about the future in people with motor neuron disease : a grounded theory of self-care processes" 50 (50): 138-143, 2018
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31 Cushman G, "Age, disease symptoms, and depression are associated with body image dissatisfaction in newly diagnosed pediatric inflammatory bowel disease" 72 (72): e57-e62, 2021
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34 Ahola Kohut S, "A qualitative content analysis of peer mentoring video calls in adolescents with chronic illness" 23 (23): 788-799, 2018
35 Hsu CL, "A multiple case study for spinal muscular atrophy students to use assistive technology" National University of Tainan