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    젊은 나이에 발병한 파킨슨병 환자의 건강-질병 전환 경험 과정 = Health-Illness Transition of Patients with Young-Onset Parkinson’ s Disease

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    https://www.riss.kr/link?id=A104580322

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    Purpose: The purpose of this study was to explore the health-illness transition of patients with Young-Onset Parkinson's Disease(YOPD). Methods: From June to November 2011, 17 patients with YOPD who visited a neurologic clinic in a tertiary hospitalparticipated in the study. Data were collected through in-depth interviews and analyzed using the grounded theory ofStrauss and Corbin. Results: The core category of the participants' health-illness transition emerged as ‘reshaping identity followinguncontrollable changes’. The participants’ health-illness transition process consisted of six phases in sequence: egowithdrawal, loss of role, frustration, change of thought, modification of life tract, and second life. Although most participantsproceeded through the six phases chronologically, some returned to the frustration phase and then took up the remainingphases. Conclusion: The study results provide an in-depth understanding of health-illness transition experiences in the participants.
    These findings suggest a need to develop appropriate nursing intervention strategies according to the different phasesin the health-illness transition of patients with YOPD.
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    Purpose: The purpose of this study was to explore the health-illness transition of patients with Young-Onset Parkinson's Disease(YOPD). Methods: From June to November 2011, 17 patients with YOPD who visited a neurologic clinic in a tertiary hospitalpa...

    Purpose: The purpose of this study was to explore the health-illness transition of patients with Young-Onset Parkinson's Disease(YOPD). Methods: From June to November 2011, 17 patients with YOPD who visited a neurologic clinic in a tertiary hospitalparticipated in the study. Data were collected through in-depth interviews and analyzed using the grounded theory ofStrauss and Corbin. Results: The core category of the participants' health-illness transition emerged as ‘reshaping identity followinguncontrollable changes’. The participants’ health-illness transition process consisted of six phases in sequence: egowithdrawal, loss of role, frustration, change of thought, modification of life tract, and second life. Although most participantsproceeded through the six phases chronologically, some returned to the frustration phase and then took up the remainingphases. Conclusion: The study results provide an in-depth understanding of health-illness transition experiences in the participants.
    These findings suggest a need to develop appropriate nursing intervention strategies according to the different phasesin the health-illness transition of patients with YOPD.

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    참고문헌 (Reference)

    1 정선주, "파킨슨병의 유전 인자" 대한의사협회 54 (54): 70-78, 2011

    2 박영례, "파킨슨병 환자의 적극적 삶의 추구과정" 한국간호과학회 36 (36): 710-720, 2006

    3 김성렬, "파킨슨병 환자의 삶의 질에 영향을 미치는 요인" 대한신경과학회 23 (23): 770-775, 2005

    4 이기옥, "젊은 나이에 산발성 파킨슨병이 생긴 한국인 환자의 Parkin 유전자 변이" 대한신경과학회 24 (24): 26-30, 2006

    5 Williams, S., "‘stony road… 19 year journey’ ‘ridging’ hrough late-stage Parkinson’ disease" 13 (13): 373-388, 2008

    6 Schrag, A, "Young-versus older-onset Parkinson’s disease: Impact of disease and psychosocial consequences" 18 (18): 1250-1256, 2003

    7 Calne, S. M, "Young onset Parkinson’s disease. Practical management of medical issues" 14 (14): 133-142, 2008

    8 Kostić, V. S, "Treatment of young-onset Parkinson’s disease: Role of dopamine receptor agonists" 15 (15): S71-S75, 2009

    9 Stocchi, F, "Treatment of levodopa-induced motor complications" 23 (23): S599-S612, 2008

    10 Chick, N., "Transitions: A nursing concern, In Nursing research methodology: Issues and implementation" Aspen Publishers 237-257, 1986

    1 정선주, "파킨슨병의 유전 인자" 대한의사협회 54 (54): 70-78, 2011

    2 박영례, "파킨슨병 환자의 적극적 삶의 추구과정" 한국간호과학회 36 (36): 710-720, 2006

    3 김성렬, "파킨슨병 환자의 삶의 질에 영향을 미치는 요인" 대한신경과학회 23 (23): 770-775, 2005

    4 이기옥, "젊은 나이에 산발성 파킨슨병이 생긴 한국인 환자의 Parkin 유전자 변이" 대한신경과학회 24 (24): 26-30, 2006

    5 Williams, S., "‘stony road… 19 year journey’ ‘ridging’ hrough late-stage Parkinson’ disease" 13 (13): 373-388, 2008

    6 Schrag, A, "Young-versus older-onset Parkinson’s disease: Impact of disease and psychosocial consequences" 18 (18): 1250-1256, 2003

    7 Calne, S. M, "Young onset Parkinson’s disease. Practical management of medical issues" 14 (14): 133-142, 2008

    8 Kostić, V. S, "Treatment of young-onset Parkinson’s disease: Role of dopamine receptor agonists" 15 (15): S71-S75, 2009

    9 Stocchi, F, "Treatment of levodopa-induced motor complications" 23 (23): S599-S612, 2008

    10 Chick, N., "Transitions: A nursing concern, In Nursing research methodology: Issues and implementation" Aspen Publishers 237-257, 1986

    11 Kralik, D., "Transition: A literature review" 55 (55): 320-329, 2006

    12 Fox, S. H, "The movement disorder society evidence-based medicine review update: Treatments for the motor symptoms of Parkinson’s disease" 26 (26): S2-S41, 2011

    13 Calne, S. M, "Psychosocial issues in young-onset Parkinson’s disease: Current research and challenges" 14 (14): 143-150, 2008

    14 Ellis, J. M., "Psychological transition into a residential care facility: Older people's experiences" 66 (66): 1159-1168, 2010

    15 Periquet, M., "Parkin mutations are frequent in patients with isolated early-onset parkinsonism" 126 (126): 1271-1278, 2003

    16 Burgener, S. C, "Measuring perceived stigma in persons with progressive neurological disease: Alzheimer's dementia and Parkinson’s disease" 7 (7): 31-53, 2008

    17 Whitney, C. M., "Maintaining the square. How older adults with Parkinson’s disease sustain quality in their lives" 30 (30): 28-35, 2004

    18 Haahr, A., "Living with advanced Parkinson’s disease: A constant struggle with unpredictability" 67 (67): 408-417, 2011

    19 Fox, S. H, "Levodopa-related motor complicationsphenomenology" 23 (23): S509-S514, 2008

    20 Meleis, A. I., "Experiencing transitions : An emerging middle-range theory" 23 (23): 12-28, 2000

    21 de Lau, L. M, "Epidemiology of Parkinson’s disease" 5 (5): 525-535, 2006

    22 Schrag, A, "Epidemiological, clinical, and genetic characteristics of early-onset parkinsonism" 5 (5): 355-363, 2006

    23 Guba, E. G., "Effective evaluation: Improving the usefulness of evaluation results through responsive and naturalistic approaches" Jossey-Bass 1981

    24 Schrag, A., "Cross sectional prevalence survey of idiopathic Parkinson’s disease and Parkinsonism in London" 321 (321): 21-22, 2000

    25 Strauss, A., "Basics of qualitative research: Techniques and procedures for developing grounded theory" Sage Publications, Inc 1998

    26 National Health Insurance Service, "2002-2008 medical treatment trends analysis of geriatric diseases in Korea"

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