Chronic childhood disease : an introduction to psychological theory and research

목차 (Table of Contents)

• CONTENTS
• Preface = ⅸ
• 1 Psyrhological perspectives in chronic childhood disease = 1
• Introduction = 1
• Integration with developmental psychology = 3
• Integration of research and clinical practice = 6
• Overview = 8
• 2 Admission to hospital = 11
• Introduction = 11
• Psychological impact of admission = 14
• Preparation for hospital = 17
• Preparation of well children = 18
• Evaluations of well child programmes = 20
• Preparation of acuiely sick children = 21
• The role of parents = 25
• Conclusions = 26
• 3 The nature of pain = 28
• Introduction = 28
• The measurement and assessment of pain = 29
• Distinctions between measurement and assessment = 30
• Meagurement of pain = 30
• Cognitive or self-report methods = 30
• Behavioural methods = 31
• Physiological methods = 33
• Assessment of pain = 33
• Dievelopmental changes In understanding and experience of paln = 34
• Definitions and understanding of pain = 34
• Symptom-reporting = 36
• Coping strategies = 36
• Intervention strategies = 38
• Relaxation = 38
• Puppet therapy = 38
• Hypnosis = 39
• Coping with stress-inoculation = 40
• Conclusions = 41
• 4 Adjustment in the child with chronic desease = 42
• Introduction = 42
• The incidence of 'maladjustment' in chronically sick children = 44
• Problems of definition = 44
• Methodological issues = 45
• Theoretical approaches = 46
• Population-based research = 48
• Asthma = 49
• Birth defects = 51
• Cancer = 51
• Diabetes = 53
• Haemophilia = 53
• Juvenile rheumatoid arthritis = 54
• Renal disease = 56
• Sickle-cell anaemia = 56
• Spina bifida = 57
• Studies involving more than one disease group = 57
• Conclusions = 58
• 5 Adjustment in the family = 61
• Introduction = 61
• Knowledge = 62
• Variables which deiermine maternal adjustment = 63
• Risk factors = 64
• Disease and disability parameters = 64
• Resistance factors = 67
• Family environment = 67
• Social support = 68
• Marital adjustment = 69
• General correlates of coping in families = 70
• Siblings = 72
• Family communication and interaction = 74
• Concluslons = 76
• 6 Communication and education = 78
• Introduction = 78
• The communication of 'bad news' = 79
• Children's understanding of chronic disease = 81
• Developmental changes in children's understanding of illness = 83
• The cognitive stage approach to studying children's concepts of illness = 84
• Concepts of illness = 84
• Concepts of the body = 85
• Concepts of death = 86
• Concepts of related health and illness issues = 86
• Criticisms of the 'stage' model = 88
• Alternative theoretical approaches = 89
• The 'script' approach = 90
• Conclusions = 91
• 7 Intervention programmes = 93
• Introduction = 93
• Programmes to increase disease-related knowledge = 93
• Programmes to increase self-care skills = 95
• Programmes to improve social skills = 98
• Interventions with families and schools = 100
• Programmes to improve participation in school-life = 100
• Interventions for parents = 102
• Interventions with bereaved families = 103
• Conclusions = 104
• 8 Coping with chronic disease = 105
• Introduction = 105
• Theoretical approaches to understanding coping during childhood = 105
• Coplng with everyday stress = 111
• Interpersonal stress = 112
• School-related stress = 113
• Conclusions = 114
• 9 Future directions = 116
• Developmental perspectives = l16
• Structuralist versus functionalist approaches = 118
• The psychological effects of chronic disease on the child = 119
• Chronic disease : a single diagnosis? = 119
• Outcome measures = 121
• Intelligence = 121
• Social development = 122
• Personality = 123
• Other issues in child adjustment research = 123
• Time = 123
• Gender = l24
• Adjustment in families = 125
• Psychology-paediatric liaison = 126
• References = 128
• Author index = 159
• Subject index = 170