장애아가족의 가족지원제도의 요구와 삶의 질 향상을 위한 정책적ㆍ제도적 개선방안 = A Study on Needs of Support-System for Family with disabled Child and political,institutional Improvement for Quality Improvement of Life of Family with disabled Child`

다국어 초록 (Multilingual Abstract)

The birth of children with disabilities effects on parents of children with disabilities, non-disabled brothers and sisters, namely, members of a family. And disabled child’s families experience various conflicts each other in one’s home, for example, marital conflict, conflicts between parents and disabled child, conflicts between parents and non-disabled child and conflicts between disabled child and non-disabled brothers and sisters in everyday life. The family members of disabled child share the responsibility of nurturing disabled child. Therefore, the family with disabled child has more stress and trouble than family with non-disabled child. So, the problems in various aspects of family with disabled child can be resolved through politicalㆍinstitutional support for family with disabled child based on sharing social responsibility. Since 2007, policies for ‘support for family with disabled child’ of 「Health and Family Support Centers」are carried out according to undertaking for support for family with disabled child, but concerning this support, several problems have been pointed out. In this study, situations of ‘support system for family with disabled child’ for improvement about quality of life for family with disabled child would be explored and concerned on that, problems and ways to improve of support should be presented. So, the improvement of ‘support for family with disabled child’ in order to quality of one’s life of family with disabled child could be seen as follows. First, the ‘support for family with disabled child’ ought to be practiced according to the needs of family members(children with disabilities, parents, non-disabled brothers and sisters etc.). Second, the ‘support for family with disabled child’ ought to be practiced considering to financial support for family with disabled child(another free day care and treatment increased support for child with disabilities etc.). Third, the ‘respite care’ and the ‘Personal Assistance Support System’ ought to be expanded regardless of disability rating and time to everyone. Forth, the pension system for disabled person ought not to be based on disability rating but income level of person with disabilities. Fifth, ‘long-term care support system’ ought to be expanded for all disabled people.