자폐성장애 아동 어머니의 삶의 전환 과정 = Life Transition of Mothers of Children with Autism

다국어 초록 (Multilingual Abstract)

Purpose: While there are a number of studies on children with disabilities, there have been few studies on mothers of children with autism. The purpose of this study was to explore the process of life transition of mothers who have children with autism. Methods: From June 2007 to May 2009, the researcher interviewed 15 mothers of children with autism living in Seoul City, Gyeonggi or Chonbuk Provinces, and then analyzed the data gathered using the constant comparative method of grounded theory. Results: “Living together holding a string of fate” was a core category showing along the continuum of life. The basic social process of life transition encompassed 5 stages: stages of denying, wandering, devoting,mind controlling, and finally accepting. These five stages proceeded in phases, though returned back to the wandering stage occasionally. Conclusion: This study has opened the door to understanding how mothers of children with autism experienced life transition. The findings suggest that differentiated support and care at each stage should be given and there is the need to develop transition assessment tools for mothers of children with autism.

참고문헌 (Reference)

1 오원옥, "주의력결핍 과잉행동장애(ADHD) 아동 부모의 양육 경험: 정상에 다가가기" 한국간호과학회 37 (37): 91-104, 2007

2 이애란, "장애아동 어머니의 돌봄 행위 구조모형" 한국간호과학회 39 (39): 673-682, 2009

3 신현정, "고위험 신생아 어머니의 모성전환 과정" 한국간호과학회 34 (34): 4-251, 2004

4 Green, S. E, "We’re tired, not sad: Benefits and burdens of mothering a child with disability" 64 : 150-163, 2007

5 Mu, P. F, "Transition experience of parents caring of children with epilepsy: A phenomenological study" 155 : 1-9, 2006

6 Lim, Y. S, "The lived experience of mothers who have children with pervasive developmental disorders" Seoul National University 2004

7 Murphy, N. A, "The health of caregiver for children with disabilities: Caregiver perspectives" 32 : 180-187, 2006

8 Lee. M. H, "The emotional problems of family having children with disabilities in daily life" 43 (43): 137-158, 2004

9 Trapolini, T, "The effect of maternal depression and marital adjustment on young children’s internalizing and externalizing behavior problems" 33 : 794-803, 2007

10 Korean Statistical Information Service, "Registered dis-abled persons data"

11 Montes, G, "Psychological functioning and coping among mothers of children with autism: A population-based study" 119 : 1040-e1046, 2007

12 Glidden, L. M, "Personality, coping style and well-being of parents rearing children with developmental disabilities" 50 : 949-962, 2006

13 Hassall, R, "Parenting stress in mothers of children with an intellectual disability: The effects of parental cognitions in relation to child characteristics and family support" 49 : 405-418, 2005

14 Johnson, B. S, "Mothers’ perceptions of parenting children with disabilities" 25 : 127-132, 2000

15 McKeever, P, "Mothering children who have disabilities: A Bourdieusian interpretation of maternal practices" 59 : 1177-1191, 2004

16 Nelson, A. M, "Metasynthesis: Mothering other-than-normal children" 12 : 515-530, 2002

17 Woolfson, L, "Family well-being and disabled children: A psychosocial model of disability-related child behaviour problems" 9 : 1-13, 2004

18 Duarte, C. S, "Factors associated with stress in mothers of children with autism" 9 : 416-427, 2005

19 Meleis, A. I, "Experiencing transitions: An emerging middle-range theory" 23 : 12-18, 2000

20 Sawyer, L. M, "Engaged mothering: The transition to motherhood for a group of African American women" 1 : 14-21, 1999

21 Landsman, G, "Emplotting children’s lives: Developmental delay vs. disability" 56 : 1947-1960, 2003

22 Im, S. B, "Effects of a mother-child attachment promotion program for children with pervasive developmental disorder" Seoul National University 1997

23 Preski, S, "Contribution of maternal identity and lifestyle to young children’s adjustment" 20 : 107-117, 1997

24 Mercer, T. R, "Becoming a mother versus maternal role attainment" 36 : 226-233, 2004

25 Corbin, J, "Basics of qualitative research (3rd ed.)" Sage Publications 2008

26 Lee, K. H, "An analysis on the pathway between family stress and adaptation in families with mentally handicapped children" 24 : 666-677, 1994

27 King, G. A, "A qualitative investigation of changes in the belief system of families of children with autism or Down syndrome" 32 : 353-369, 2006