자폐유아 가족중재 방안에 관한 연구 = A Study on Needs and Supports for the Families of the Autistic Children

국문 초록 (Abstract)

본 연구에서는 자폐아가 있는 가정에서 발생할 수 있는 여러 가지 가족 내 문제점을 질적연구방법을 통하여 밝혀내고, 그 문제점을 해결할 수 있는 방법으로 가족중재 방안을 모색하고자 한다. 자폐장애로 진단된 유아의 가족 및 치료교육 교사를 대상으로 심층면담을 하여 그들의 문제를 분석해 본 결과, 자폐장애에 대한 이해부족, 경제적 부담, 자폐적 특성으로 인한 스트레스, 신체적 고통, 사회심리적 고통, 가족간 의견 불일치에서 야기되는 고통 등이 자폐유아 가족의 문제점으로 밝혀졌다. 이러한 자폐유아의 가족 내 문제를 중재하는 방안으로는 부모교육을 통한 자폐장애의 이해 및 실질적 기술습득의 기회 제공, 가족 내 인적자원의 여부파악과 활용방법의 제시 등이 단기적 목표로 제안되었고, 일반인들의 장애에 대한 인식 및 태도변화, 자폐장애 유아를 위한 개별교육시설의 양적확대 등이 장기적 목표로 제안되었다.

다국어 초록 (Multilingual Abstract)

It is commonly agreed upon autism is a pervasive developmental disorder in which individuals are impaired in their social interactions, ability to response and ability to communicate. Of all the autism symptoms none has attracted more interest and fascination than the peculiarities of social and interpersonal relationships. This is no doubt because the subtleities and complex variable constituting social relationships are difficult to accept and to educate in all types of families, especially those with autistic children.
The basic premise underlying this study is that the primary environment for the children with autism is the family. It is the most appropriate agents for transmitting basic human culture and living abilities to their young children. The researcher in this study attests to the important role played by the whole family members and community intervention agencies to support the parents of autistic children in carrying out their daily caregiving and intervention tasks.
Although the incidence of autism as compared with similar developmental disabilities is relatively low, it has received a disproportionately large amount of attention from researchers but it has been vise versa in Korea. In general, great attention of researchers is in part because of the severity of the autistic child's developmental problems and its potentially devastating effects and whole family suffering. Nevertheless, the autistic problems of young children persist and become more compelling as the children identified in early childhood grow into primary school students.
The main purpose of this study is to suggest a systematic outline that will get the help the families with autistic children need without having to give up parental responsibility and control.
Finally, the study concluded that when families have a autistic child, all family members will be affected. There is no fail-safe plan which a family should follow. However, the educational interventionsts who have the most frequent contact over long periods of time with the parents of autistic children must assume much of the responsibility for guiding the parents towards a healthy acceptance of their autistic children. Also, early parent education for autistic children will assist the family members in understanding the following.
1. All family members must maintain a consistent and accepting attitude and not become discourage or overzealous by slow or rapid progress.
2. Parents must understand that their autistic children may have lifelong afflictions and that it is the parents' responsibility to help prepare the child for a life that is as near normal as possible.
In final, this investigation may the first to determine the prevalence of the childhood autistic population in Korea, as defined by new research diagnostic criteria. The main finding is that autism in Korea occurs twice as frequently as studies incorporating the more traditional definition indicate.
We hope to address some unresolved issues relating to this study in the future researches.

목차 (Table of Contents)

• Ⅰ. 서론
• Ⅱ. 연구방법
• 1. 대상 및 자료수집
• 2. 자료분석 및 처리
• Ⅲ. 연구결과 및 논의
• 1. 자폐유아의 가족 문제
• 2. 자폐유아의 가족지원 관련 사항
• Ⅳ. 결론