중첩된 재난과 팬데믹 연대 ―한일 장애 활동가 및 간호사 구술을 중심으로

다국어 초록 (Multilingual Abstract)

I will investigate the crisis reponses of the disability activists and care workers in Korea and Japan. I will reconsider the assumed natural value of “humanity, health, and normalcy” and suggest the pandemic solidarity to transform the relationship between humanity and environment. I will conceptualize the phenomena in the narratives of the activists, and care workers, referring to news reports and literature.
Chapter two is based on the interviews with the disability activists in the city Daegu. I focus on the multi-layered re-institutionalization by looking into the imminent collapse of the care giving system together with the cases of joint suicides related to the developmental disabilities at the time. I will highlight the importance of “self-sovereignty in which they can choose dependency” and their ambivalent feelings of “self-pride together with self-hatred.”
Chapter three carries interviews with Mr. Noboru and Ms. Yumiko of Emergency Operation Center against New Corona Virus. I will examine the problems with the triage systems and self-determination strategies for the patients’ lives. I will locate those suffering in what I call “a disastrous state in pre-existence” and suggest a strategy of the “joint of cure and care” to support the disabled.
In Chapter four, I make a comparison between Korea and Japan in the disability activists’ engagement with the multi-layered (re-)institutionalization and the effort to get rid of triage and self-determination system. Firstly, I interviewed Sinja and Gatsnori who run a “de-institutionalized institution” and asked them about their strategies for the patients’ independence from facilities, coercion and exclusion. Secondly, I had interviews with nurses at Dongsan Hospital in Daegu and highlight their activities through which they work as hub of cure and care. Thirdly, I will reconsider the possibilities for the disabled to form new relationships with their environments, decomposing the discourses of “humanity, health, and normalcy.”
To sum up, I criticize the notions of “humanity, health and normalcy” and seek a radical change from the anthropocentric and non-disabled-centered relationships with the environments. For this purpose, I mark the intersecting area in which disability activists in Japan and Korea can complement each other in coping with this pandemic.

목차 (Table of Contents)

• 1. 팬데믹 앞에서―항상적 시설화, 중첩된 재난
• 2. 한국의 ‘중첩된 시설화’ 속 발달장애인의 불/가능한 사회적 거리두기
• 3. 일본의 중첩된 재난 속 ‘생명 선별’과 ‘자기결정론’ 비판
• 4. 중첩된 재난, 그 밖에서 : ‘땅끝’이라는 장소와 ‘허브’가 된 간호사
• 5. 중첩된 재해 속에서: 미리 도래한 어떤 공통장의 경험들
• 참고문헌