생의 마지막 단계.삶의 완결.완화간호 모델

김달숙,Kim, Dal-Sook 한국호스피스완화의료학회 2009 한국호스피스.완화의료학회지 Vol.12 No.3

근래의 호스피스 완화 서비스에 대한 국가의 관심과 지원 정책은 매우 고무적이다. 그럼에도 불구하고 호스피스 완화 의료의 정착과 발전이라는 명목을 가지고 우리는 호스피스 완화간호와 관련된 우리 주위의 현실에 비판과 반영의 눈으로 돌아볼 필요가 있다. 본 연구는 호스피스 철학에 부합되는 완화 간호 모델을 찾아내어 생의 마지막 단계에 있는 사람과 가족의 완화 간호에 적합한 모델인가를 심사하는 것은 목적으로 하였다. 소개되고 심사된 모델은 Eagan, Labyak의 호스피스 경험 모델과 Byock의 삶의 완결(life completion)을 위한 성장 모델이었다. 호스피스 경험 모델은 생의 마지막 단계에 있는 환자와 가족의 경험과 가치관에 근거한 임종 간호 모델로서 개개인의 경험의 독특성을 인정하며 환자 가족 개개인의 다 영역의 역동성과 상호작용적 관련성과 다 영역적 특성을 가진 개개인의 상호 관계성을 인정한다. 또한, 생의 마지막 단계에서도 다 영역적 상호 관계성은 긍정적인 성장과 발달을 만들 수 있음을 인정한다. 이 모델은 생의 마지막 단계에 있는 개인과 가족의 개개인 요구에 부합된 삶의 질 개선, 고통 제거, 삶의 완결, 좋은 죽음을 이끄는 완화 간호를 이끌 수 있다고 평가되었다. Byock의 성장 모델은 임종의 시기를 마지막 삶의 발달 단계로 보았다. 이 모델은 생의 마지막 단계에 있는 개인과 가족을 삶의 완결의 과정을 경험할 수 있는 존재로 보았다. 모델은 세속적인 일/사회적인 일/개인적인 관계들/개인 내재적인 영역/초월적 영역들의 세부 항목으로 이루어진 이정표와 발달 과업을 포함한다. 이 모델에서는 전문 의료인이 이정표 및 과업을 이용하여 성장의 주체의 변화를 얼마나 잘 파악하여 내고 도와주는 가가 환자 및 가족의 성장의 열쇠가 되며 한 인간이 인간 실존 안에서 삶을 마칠 수 있게 만드는 결과를 낼 수 있다.그 결과 개인은 평화와 안녕 속에서 삶을 마감할 수 있다. 이 두 모델은 호스피스 철학에 부합되는 완화 간호의 모델로 고려되었다. Despite a recent increased nation's attention given to improving end-life care, we professionals need to be more critical and reflective on our realities surrounding hospice palliative care. The aim of this paper is to suggest that palliative care models can be used for patients/families in the last phase of life and examine whether they are appropriate for caring them in congruence with philosophy of hospice. The hospice experience model (HEM) of Eagan & Labyak and the developmental model of Byock are introduced and examined for their congruence with philosophy of hospice in applying to clinical practice. The HEM as a patient/family value-directed end of life care model emphasizes three principles; unique experience of patient/family, interactions/relationships among multiple dimensions of personhood and between family, and personal growth and development in the face of suffering through a life-completion. The developmental model stipulates dying as the last stage of living, a stage of life cycle in which patients/family may have growth through life-completion in multidimensional relationships of personhood. The model includes the developmental landmarks and tasks for life-completion as the framework to guide a means of professionals' to recognize their opportunity to grow. The landmarks and tasks include worldly and social affair, individual relationships, intrapersonal, and transcendent dimension. The models could work as appropriate palliative care models for patients/families in the last stage of living. The professionals need to be encouraged to apply the models to end of life care setting.

완화돌봄에서 개인 경험에 근거한 희망 중재를 향하여

김달숙,Kim, Dal-Sook 한국호스피스완화의료학회 2012 한국호스피스.완화의료학회지 Vol.15 No.1

목적: 본 연구는 희망은 개인화된 유일하며 주관적이고 역동적인 경험이라는 가정 하에서 개인 경험에 근거한 희망 찾기 중재를 하는 데 도전해야할 문제점들을 토의하는 것을 목적으로 하였다. 방법: 연구자는 개인 경험에 근거한 희망을 향하여 가는 데 도전하여야 할 제한점과 요구되는 방안을 확인하기 위하여 비판적인 분석과 토의가 포함된 문헌 고찰을 사용하였다. 결과: 도전 과제들은 1. 개념화 문제로 대표되는 것들로서 종종 희망이 다양한 속성을 가진 표준화된 단일 구조나 현실적인 희망만이 강조되는 단일 구조로 또는 한 문헌에서 두 가지 오리엔테이션(상대주의 대 단일주의)의 혼합 속에서 기술되거나 사용되었다. 2. 완화돌봄을 받고 있는 환자들에 의하여 고유하게 경험되는 다양한 희망의 패턴이나 경험들에 대한 연구가 거의 없다. 3. 개인 경험에 근거한 희망 중재와 그 방법에 대하여 다룬 문헌이 거의 없다. 결론: 개념화 문제는 오랫동안에 걸쳐서 관련 학문 학자와 전문가에 내재되어온 고정된 오리엔테이션과 관계가 있는 것으로 보여진다. 따라서 이 문제는 우리들의 고정된 생각의 변화와 고정된 생각으로부터의 해방을 요구한다. 두 번째 도전 과제는 효과적이고 적절한 개인 경험에 근거한 희망 중재에 사용될 수 있도록 완화 간호 세팅에 있는 환자들의 다양한 희망 경험에 대한 다문화적 연구를 필요로 한다. 세 번째 도전 과제는 개인경험에 근거한 희망 중재를 위한 효과적인 방법을 찾을 것을 요구한다. Purpose: The aim of this study was to discuss challenges for hope seeking intervention based on individual experience (HSIBIE) in palliative care, assuming that hope is an individualized unique, subjective, and dynamic experience. Methods: Literature, including analysis and discussion, was reviewed to identify limitations and ways to develop HSIBIE. Results: This study identified following challenges: 1. Hope was often described and utilized as a standardized unified structure with varying attributes or mono-structure emphasizing a realistic hope, or both of them (relativism vs. monism) in one literature. This challenge is represented as a problem in conceptualization. 2. Few studies discussed various patterns of hope or individuals' unique experiences in palliative care. 3. The HSIBIE and the method for the HSIBIE have been rarely discussed. Conclusion: A problem in conceptualization is often related to fixed ideas formed over a long period and used in a closed circle of scholars and professionals. Therefore, such fixed ideas should be openly challenged with fresh perspectives. The second issue requires a cross-cultural studies of various hope experiences in palliative care, which can be used for effective and appropriate HSIBIE.

종양전문간호사 업무에 대한 수가 실태

김달숙(Kim Dal Sook),김수현(Kim Soo Hyun),김광성(Kim Kwang Sung),전명희(Jun Myung Hee),김진현(Kim Jinhyun),이현주(Lee Hyun-Joo) 대한종양간호학회 2011 Asian Oncology Nursing Vol.11 No.2

Purpose: The purpose of this study was to examine the actual care costs paid to Korean Oncology Advanced Practice Nurses (KOAPN). Methods: We collected data using a group discussion and questionnaire identified 115 tasks from job descriptions developed by the Korean Accreditation Board of Nursing. Forty-two KOAPN working at three university hospitals in Seoul were asked to evaluate each task as to type and whether the cost is paid or not. They were also asked to indicate the tasks in urgent need of development of a care cost with high priority. Results: Only five tasks (4.3%) related to treatment and complication related interventions or education were paid, and they were paid only once during the entire treatment period and were not covered by national health insurance. It was approved as a medical fee by health insurance review & assessment service. Furthermore, the names of the authority (doctor) and the actual provider (nurse) of the prescriptions were different for three of those tasks. Most of the suggested tasks needing development of care costs were actions specifically performed by nurses (physical-psychosocial-spiritual assessment, independent nursing interventions). Conclusion: KOAPN are currently paid for few tasks. To maximize the utilization of KOAPN, the establishment of a clear rational payment system directly related to their actual activities is needed.

수술 직후 암 환자의 희망증진 간호를 위한 이론 모델 개발 : 현실적 희망

김달숙(Kim Dal Sook),박인숙(Park In Sook) 한국성인간호학회 2006 성인간호학회지 Vol.18 No.1

컴퓨터 텍스트 분석프로그램을 적용한 암환자의 투병수기 분석

김달숙(Kim, Dal Sook),박아현(Park, Ah Hyun),강남준(Kang, Nam Jun) 한국간호과학회 2014 Journal of Korean Academy of Nursing Vol.44 No.3

Purpose: This study was done to explore experiences of persons living through the periods of cancer diagnosis, treatment, and selfcare. Methods: With permission, texts of 29 cancer survival narratives (8 men and 21 women, winners in contests sponsored by two institutes), were analyzed using Kang’s Korean-Computerized-Text-Analysis-Program where the commonly used Korean-Morphological-Analyzer and the 21st-century-Sejong-Modern-Korean-Corpora representing laymen’s Korean-language-use are connected. Experiences were explored based on words included in 100 highly-used-morphemes. For interpretation, we used ‘categorizing words by meaning’, ‘comparing use-rate by periods and to the 21st-century-Sejong-Modern-Korean-Corpora’, and highly-used-morphemes that appeared only in a specific period. Results: The most highly-used-word-morpheme was first-person-pronouns followed by, diagnosis·treatmentrelated-words, mind-expression-words, cancer, persons-in-meaningful-interaction, living and eating, information-related-verbs, emotionexpression-words, with 240 to 0.8 times for layman use-rate. ‘Diagnosis-process’, ‘cancer-thought’, ‘things-to-come-after-diagnosis’, ‘physician·husband’, ‘result-related-information’, ‘meaningful-things before diagnosis-period’, and ‘locus-of-cause’ dominated the life of the diagnosis-period. ‘Treatment’, ‘unreliable-body’, ‘husband · people · mother · physician’, ‘treatment-related-uncertainty’, ‘hard-time’, and ‘waiting-time represented experiences in the treatment-period. Themes of living in the self-care-period were complex and included ‘living-as-a-human’, ‘self-managing-of-diseased-body’, ‘positive-emotion’, and ‘connecting past · present · future’. Conclusion: The results show that the experience of living for persons with cancer is influenced by each period’s own situational-characteristics. Experiences of the diagnosis and treatment-period are negative disease-oriented while that of the self-care period is positive present-oriented.

타이치운동프로그램이 만성 정신분열병환자의 신체적 기능, 자아존중감과 사회적 행동에 미치는 효과

오경옥(Oh Kyong Ok),박영희(Park Young Hee),소희영(So Hee Young),김달숙(Kim Dal Sook),박인숙(Park In Sook),김종임(Kim Jong Im),김태숙(Kim Tae Sook),김현리(Kim Hyun Li),송라윤(Song Rhayun),안숙희(An Suk Hee) 대한근관절건강학회 2010 근관절건강학회지 Vol.17 No.1

인체계측과 생체전기측정법의 비교를 통한 경제성과 타당성을 지닌 체지방 측정법 제안

김학선(Kim, Hack-Sun),전명희(Jun, Myung-Hee),박영임(Park, Young-Im),엄동춘(Uhm, Dong-Choon),김달숙(Kim, Dal-Sook) 한국간호교육학회 2008 한국간호교육학회지 Vol.14 No.2

진단 초기 암환자의 희망구조 파악을 위한 탐색적 연구

박문경(Park Moon Kyoung),김달숙(Kim Dal Sook) 대한종양간호학회 2009 Asian Oncology Nursing Vol.9 No.2

Purpose: This study was to explore the hope structures of the newly diagnosed cancer patients by examining the relationships between hope and the three concepts of ‘Personal Spirit’, ‘Risk’ and ‘Authentic Caring’ which composed the multidimensions of the Nekolaichuk and Bruera’s hope model. Methods: Data was collected via survey from 32 newly diagnosed cancer patients. The perceived meaning of life (PML) for ‘personal spirit’, perceived confidence in cure (PCC) for ‘risk’, and perceived family support (PFS) and perceived support from medical team (PSM) for ‘authentic caring’ were adapted from the definitions of the concepts in the model. Hope, PML, and PCC were measured with VAS. PFS and PSM were measured with Korean version of ‘Cobb’s family support scale’, which was modified by Kang. Pearson correlation coefficients were used to identify the relationships among the concepts. Results: The significant relationships were revealed between hope and PCC (p<.001), hope and PML (p<.001), PML and PCC (p<.001), PFS and PML (p=.030), and PSM and PML (p=.047). Conclusion: The newly diagnosed cancer patients experience hope in different ways. The cancer patients’ hope immediate after diagnosis, however, is most likely to be experienced as seeking balance between uncertainty about cancer treatment and the meaning of life.

유방암 수술 환자의 감각 변화에 대한 연구

정영희(Jeong Younghee),김달숙(Kim Dal Sook) 대한종양간호학회 2009 Asian Oncology Nursing Vol.9 No.2

Purpose: The purpose of this study was to obtain information about the experiences of sensations after breast cancer surgery characterized by prevalence, frequency, and severity, distresses, and disturbances in ADL using the BSAS (Breast Sensation Assessment Scale) and to develop the standardized Korean BSAS. Methods: Thirty two women from 3 to 100 days after breast cancer surgery (BCS) completed Roberta’s BSAS. The 18 sensations of BSAS were translated using the references of Lee’s Korean Pain Rating Scale and English-English, English-Korean dictionaries and the consultation from two native Americans, one bilingual permanent resident of the States, and one nursing professor. The Korean-translated BSAS has high reliability in test-retest. Likert type 4-point scale and 100 mm VAS were used for assessment. Results: Certain sensations remained prevalent (tender, pull, pain), frequent (numb, nag, throb), severe (throb, shoot, numb), causing distress (throb, penetrate, shoot), and influencing on ADL (throb, penetrate, nag). The most frequently experienced sensation other than BSAS was itching. There was little difference in the prevalence of symptom experiences between sentinel lymph node biopsy and axillary lymph node dissection. Conclusion: The women after BCS are suffering from neuropathic sensations. The Korean- translated BSAS could be used in effectively assessing breast sensations after BCS in Korean women.

가정 호스피스케어환자 방문간호 조사분석

이소우,이은옥,박현애,오효숙,안효섭,허대석,윤영호,김달숙,노유자,Lee, So-Woo,Lee, Eun-Ok,Park, Hyun-Ae,Oh, Hyo-Sook,Ahn, Hyo-Seop,Huh, Dae-Suk,Yun, Young-Ho,Kim, Dal-Sook,Rho, Yoo-Ja 한국호스피스완화의료학회 1998 한국호스피스.완화의료학회지 Vol.1 No.1

목적 : 오늘날 호스피스 운동은 만성질환자가 급격히 증가함에 따라 인간의 삶을 추구하여 이루어낸 가장 완벽한 대답의 하나가 되고 있다. 우리의 1996년, 1997년의 연구에서 말기환자와 그 가족들에 대한 조사를 통해 한국 호스피스의 현재 상황을 파악하였다. 또한 호스피스케어 팀과 자원봉사자와 호스피스환자 관리를 위한 정보서비스 시스템을 개발하였다. 본 연구는 호스피스 정보서비스 시스템를 통한 간호사의 가정방문 호스피스케어와 그 문제점을 분석하였다. 방법 : 1997년 10월 1일부터 1998년 3월 31일까지 서울대학교병원 등에서 의뢰받은 26명의 말기암환자를 대상으로 하였다. 데이터 베이스와 홈페이지를 통해 호스피스케어에 필요한 정보를 갖춘 호스피스 정보서비스 시스템을 인터넷을 통해 방문간호사에게 제공하였고 방문간호사들은 이 시스템을 교육받고 환자 방문시 노트북 컴퓨터를 소지하여 호스피스 정보서비스 시스템을 통해 호스피스케어를 제공하였으며 첫 방문시와 호스피스케어동안에 환자들의 신체적 심리적 사회적 자료를 수집하였다. 결과 : 연구기간동안 26명중 16명이 사망하였으며 사망자의 평균 생존기간은 20.7일이었다. 첫 방문시 식욕부진(96.2%), 거동장애(88.5%), 통증(84.6%)이 주요한 증상이었으며 226개의 간호진단 중 영양부족과 통증이 가장 흔한 진단이었다. 가족은 환자보다 호스피스케어를 더 잘 이해하고 더 요구하였다. 대부분의 환자와 가족들은 간호사에게 영적 사회적 간호를 요구하지 않았다. 결론 : 시범사업을 통해 환자와 방문 호스피스 간호사에게 통증과 영양 관리에 대한 보다 많은 정보를 제공하여야 하여야 함을 알 수 있었다. 호스피스 정보서비스 시스템은 영적 사회적 케어에 대한 정보와 인력을 보안되어질 필요가 있다. Purpose : Hospice Care is considered as one of the most perfect solutions for the problems brought up as the number of chronically ill patients are increasing rapidly and most of social welfare oriented countries are seeking the quality of life. Our former studies(1996, 1997) were to find out the current status of the hospice care in Korea by surveying terminally ill patients and their family members as well as medical professionals. The former study was also to conduct the operation research by developing an information service system for training of hospice care teams and volunteers, and hospice patients management. The purpose of this study was that hospice information service system was tested by home visiting hospice care through visiting nurses. Methods : From October 1, 1997 to March 31, 1998, Twenty six terminal cancer patients were included in this study from Seoul National University Hospital and other hospital. Databases and homepage, hospice information service system were designed and developed for the information needed for the hospice care before this study by our research team and this services were available through the internet. Visiting nurses were trained about this system and they visited the patients with PC notebook and provided them hospice care with hospice information system. They collected physical, psychiatric, social data of the subjects at the first visit and during hospice care at home. Results : Sixteen subjects(61.5%) died during the study and the mean survival was 20.7 days. Anorexia(96.2%), immobility(88.5%) and pain(84.6%) were the major symptom in the 26 subjects, Altered nutrition(26.1%) and pain(12.4%) were the most frequent diagnoses in 226 nursing diagnoses of the subjects. Families understood and demanded the hospice care more than patients. And most patients and families didn't demand spiritual or social care. Conclusion : Through this demonstration study, it was found that we have to provide the information of pain management and nutritional support for patients by the nurses and visiting hospice nurse. The information service system needs to be upgraded with information and manpower of spiritual and social care according to the findings.