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천식 환아와 보호자의 삶의 질에 영향을 주는 요인 조사를 위한 다 기관 공동 연구
조아름 ( Ah Rum Cho ),이소연 ( So Yeon Lee ),김영호 ( Young Ho Kim ),유영 ( Young Yoo ),양현종 ( Hyeon Jong Yang ),이주석 ( Ju Seok Lee ),송태원 ( Tae Won Song ),김우경 ( Woo Kyung Kim ),홍수종 ( Soo Jong Hong ),강임주 ( Im Ju Ka 대한소아알레르기호흡기학회(구 대한소아알레르기 및 호흡기학회) 2012 소아알레르기 및 호흡기학회지 Vol.22 No.1
Purpose: Pediatric asthma is the most common chronic disease in children. It negatively affects the health-related quality of life (QoL) in children with this disease and of their caregivers. This study evaluated the relationship between clinical disease severity and the QoL of patients with asthma and their caregivers. Methods: The study included 247 patients with asthma and their caregivers. The patients and caregivers completed the Korean Pediatric Asthma Quality of Life Questionnaire and the Korean Pediatric Asthma Caregivers Quality of Life Questionnaire, respectively, during clinic visits. The results were expressed as the mean score for each domain. All items were rated from 1 to 5:1, low QoL; and 5, satisfactory QoL. Results: The emotion and activity QoL scores of boys were significantly higher than those of girls (P=0.001). The QoL of both patients and their caregivers was correlated more with the patients` subjective symptom scores than with the clinical severity of asthma or with lung function. Conclusion: The QoL of patients with asthma and their caregivers decreased as asthmatic symptoms became worse. Controlling asthma symptoms is important for improving the QoL of both patients and their caregivers. Patients and their caregivers need to be evaluated and counseled during asthma treatment to improve their QoL.