중증장애인이 지각하는 활동보조서비스 수준이 자립생활에 미치는 영향 : 서울지역 활동보조서비스 이용 장애인을 중심으로 = A study of the effects of Personal Assistance Service on the independent living for the person severe disability who are residing in Seoul area

다국어 초록 (Multilingual Abstract)

In our country, a person who suffers from a severe disability has received personal assistance service as a legal right since 2007. However, their right to choose and decide is being considerably infringed in the developmental process or the service-offering procedure. Accordingly, although there is personal assistance service being provided, many cases reveal that a variety of social needs of the disabled fail to be reflected and do not conform with the goal in the enhancement of independent living.
The purpose of this study is to examine the general tendency of the required level and the availability of personal assistance service and to clarify the influential factors of personal assistance service upon the independent living of the handicapped.
For this, targeting people with disabilities who are now using personal assistance service, the questionnaire research was carried out through the Purposive Sampling method. 144 copies of the research were utilized for analysis by committing to the welfare centers which accommodate the disabled as well as the rehabilitation centers, both of which are offering personal assistance service mainly in the Seoul area.
As for the method of analysis, the descriptive statistical analysis was carried out in order to grasp the required level for the general tendency of the independent living of those who have a severe disability and how much they need personal assistance service along with its availability. In order to grasp the influence of the personal assistance service level upon independent living, the multiple regression analysis was carried out. The analytical results through this are as follows:
First, the required level for personal assistance service was indicated very highly at 3.603. The required level for personal assistance service on the activities of daily living(ADL) was highest at 3.642 for ADL, 3.597 for IADL(instrumental ability of daily living), and 3.576 for personal assistance.
Second, in the use level for personal assistance service, the use time was indicated to be 4.44 times the average use frequency per week, and to be 4.85 hours for the average one use time. It was indicated to be 3.989 for the proficiency of the personal assistance service and to be 3.643 for the proper choice of the personal assistance service. Also, the contents for the personal assistance service were indicated to be 3.288 for ADL-related service, 3.324 for IADL-related service, and 2.923 for service related to social activity.
Third, the independent living level among persons with severe disabilities was indicated relatively highly at 3.397 for the whole independence. It was indicated to be the highest in physical independence and to be the lowest in social independence with 3.589 for physical independence, 3.408 for psychological independence, and 3.240 for social independence.
Finally, the results of the multiple regression analysis on variables of having an effect on the independent living level in the persons with severe disabilities were indicated to be significantly influenced by the average use frequency per week, by the average one use time, by ADL-related service, by service related to social activity, by the required level for the personal assistance service, by age, and by whether or not social activity is involved.
In order for the personal assistance service to achieve the goal called the enhancement of the independent living through offering the comprehensive service for daily life and social life for persons with severe disabilities, the social foundation needs to be formed together so that the personal assistance service can lead to being available for participation in social activity. However, as the results of this study show, the lack of foundation related to occupational or social activity leads to what personal assistance service is formed centering on solving primary problems like ADL and what the use of service for participation in social activity is short. Accordingly, in order for personal assistance service to reinforce the capability of the independent living and to increase independence level among persons with severe disabilities, the social foundation will need to be formed together so that persons with severe disabilities can take part in society as well as increasing the time of personal assistance service.

목차 (Table of Contents)

• 제Ⅰ장 서론 1
• 제1절 문제제기 1
• 제2절 연구목적과 의의 5
• 제Ⅱ장 이론적 고찰 7
• 제1절 중증장애인 자립생활 7
• 1. 자립생활의 개념 7
• 2. 자립생활패러다임으로의 전환 9
• 3. 자립생활 서비스 11
• 4. 자립생활 측정지표 13
• 5. 자립생활에 영향을 미치는 요인 14
• 제2절 중증장애인 활동보조서비스 16
• 1. 활동보조서비스에 대한 정의 16
• 2. 활동보조서비스 제공모델 17
• 3. 우리나라의 장애인 활동보조지원 사업 현황 19
• 제3절 활동보조서비스에 대한 선행연구 24
• 1. 활동보조서비스가 자립생활에 미치는 영향 24
• 2. 활동보조서비스 이용수준 25
• 3. 활동보조서비스 필요수준 29
• 4. 인구사회학적 특성 30
• 제4절 연구모형과 가설 32
• 1. 연구모형 32
• 2. 연구가설 33
• 제Ⅲ장 연구방법 35
• 제1절 조사대상자 선정과 조사과정 35
• 제2절 변수의 정의와 측정도구 36
• 1. 종속변수의 정의와 측정도구 36
• 2. 독립변수의 정의와 측정도구 36
• 3. 통제변수의 정의와 측정도구 38
• 4. 분석방법 39
• 제Ⅳ장 연구결과 40
• 제1절 조사도구의 신뢰도 40
• 제2절 일반적 특성 41
• 1. 인구사회학적 특성 41
• 2. 활동보조서비스 필요수준의 일반적 경향 43
• 3. 활동보조서비스 이용수준의 일반적 경향 43
• 4. 중증장애인의 자립생활 수준의 일반적 경향 46
• 5. 자립생활에 영향을 미치는 요인 49
• 제Ⅴ장 결론 62
• 제1절 연구결과의 요약 및 논의 62
• 제2절 연구의 함의 64
• 제3절 연구의 한계점 및 제언 66
• 1. 연구의 한계점 66
• 2. 제언 66
• 참고문헌 68
• 부록 73
• ABSTRACT 81