장애아부모의 양육부담에 따른 가족지원서비스 연구 = A Study on Family Support Service by Nurturing Burden of Parents Raising Children with Disabilities

다국어 초록 (Multilingual Abstract)

In order to improve perception of raising children with disabilities and family support, we surveyed 275 parents who currently live in Daegu and Gyungsang book do province.
According to the result, paying for medical care scored 1.69, pressure from society scored 1.72, financial pressure scored 1.75, family conflict 2.01, education pressure was rated 2.15. For family support service, medical care was 1.69, local/society support 1.72, financial support was 1.72, family support was 2.01, education support was 2.15. The results show that paying fore medical care stressed parents most while medical care support was least satisfied.
Based on the ages, family conflict, financial and social pressure hurt them most, and based on type of disability, financial, medical social pressure was main factor.
Based on the degree of disability, pressure from society, medical care and financial was main factor.
Based on their characteristics and parent's characteristics, medical care, social/local, family, education support were the other of satisfactory. Based on children's age, there was a big gap between group in terms of family relationship and based on type of disability, there was a big gap between social and financial support. Based on parent's job, there was big difference in order of social and education support, based on parent's education level, there was big difference in order of social and medication support. However there was no difference between groups when look at parent's income.
Based on parent's location, there was a big gap between groups when considering education and family support. According to the analysis, in order to reduce the cost of raising children with disability, build more school for children with disability, or develop more of joint education and home schooling if necessary. For social support, we see a need for more employment opportunity. For family support, we need more counseling and needs to educate parents. For financial support, increase financial grant, reduce tax and medical support. There's also need for build more infrastructure for community center and needs to introduce a policy to support people with disabilities. Within the city, there should be more research and improvements to build better system for disabilities.

목차 (Table of Contents)

• Ⅰ . 서 론 1
• 1. 문제 제기 1
• 2. 연구의 의의와 목적 2
• 3. 연구의 문제 3
• 4. 연구의 한계점 3
• Ⅱ . 이론적 배경 4
• 1. 선행연구의 동향 4
• 2. 장애아동의 특성 6
• 3. 장애아 부모의 양육부담 및 가족지원서비스 13
• Ⅲ . 연구방법 30
• 1. 조사대상 30
• 2. 조사도구 30
• 3. 자료수집 31
• 4. 자료분석 방법 31
• Ⅳ . 조사결과 32
• 1. 조사대상자의 일반적 특성 32
• 2. 양육부담에 대한 인식 34
• 3. 가족지원 서비스 만족도에 대한 인식 36
• 4. 장애아 특성에 따른 양육부담 및 지원서비스 만족도 차이 38
• 5. 장애아 부모의 특성에 따른 양육부담 및 지원서비스 만족도 차이 48
• 6. 장애아전담보육시설과 장애인복지관 간의 인식 차이 62
• Ⅴ . 고찰 64
• 1. 조사대상자의 일반적 특성 64
• 2. 양육부담에 대한 인식 65
• 3. 가족지원 서비스 만족도에 대한 인식 65
• 4. 장애아 일반적 특성에 따른 양육부담 및 지원서비스 만족도 차이 66
• 5. 장애아 부모의 특성에 따른 양육부담 및 지원서비스 만족도 차이 67
• 6. 장애아전담보육시설과 장애인복지관의 양육부담 및 가족지원서비스 만족도 차이 68
• 7. 장애아 부모의 양육부담과 가족지원서비스 개선방안 68
• Ⅵ . 결론 71
• 참고문헌 73
• Abstract 76
• 부 록 78