간질장애인의 사회참여 경험연구 = Eplipsy-Disabled Persons' Participating Experience in Society

국문 초록 (Abstract)

본 연구는 간질장애인들의 사회참여에 대한 본질적 의미의 탐구과정을 통해간질장애인의 사회참여경험의 의미를 파악하는 것이다. 연구참여자들은 장애등급 3급 또는 4급으로 그들의 삶에 대해 풍부하게 표현을 할 수 있는 간질장애인12명이다. 연구방법은 간질장애인 관점에서 생생하게 사회참여를 표현하는 지오르기 현상학적방법으로 연구되었다. 그 결과 <높은 수준의 긴장과 불안>, <간질장애를 은폐함>, <발작 멈춤이 우선>, <결혼의 걸림돌>, <가족간의 유대관계좋지 않음>, <취업에 부정적 영향을 줌>, <비장애인과 동행하고 싶음> 이라는7개의 본질을 도출하였다. 간질장애인의 사회참여경험 의미를 뫼비우스의 띠를이용하여 설명하였다. 이 결과를 토대로 간질장애인의 사회참여에 대한 실천적함의가 논의되었고 간질장애인의 사회참여를 향상시키기 위한 기초자료로써 기여 할 수 있다.

다국어 초록 (Multilingual Abstract)

The study aims to understand epilepsy-disabled persons' experience of participating in society through exploring the process of essential meaning within the social participation that disabled person’s experience. The 12 participants in the study are those with epilepsy disability level three or four who can possibly communicate and are able enough to express their social participation experience. The study is based on the Giorgi descriptive phenomenological method which actively describes the social participation experience in the perspective of epilepsy-disabled persons. The following is the summarized results as 7 structures:<high levels of stress and anxiety>, <not showing epilepsy disability> <a spasm is the largest obstacle>, <marriage is difficult>, <family relationship is not satisfactory>,<employment is difficult>, <prefer to accompany non-disabled persons>In social community life, participants wanted to accompany non-disabled persons as well as to receive affectionate words and companionship from warm-hearted non-disabled individuals.In conclusion, since epilepsy-disabled persons have the appearance of a non-disabled person but live in world of epilepsy, they often face chaotic circumstances. For example, like the Mobius Strip, with a surface with only one side and only one boundary component, non-orientable, yet co-existing. Just the same, epileptic persons also try to co-exist by accompanying non-disabled persons and participating in society.

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